Join the All of Us Research Program

 
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All of Us is a new research program from the National Institutes of Health (NIH). The goal is to advance precision medicine.

Precision medicine is health care that is based on you as an individual. It takes into account factors like where you live, what you do, and your family health history. Precision medicine’s goal is to be able to tell people the best ways to stay healthy. If someone does get sick, precision medicine may help health care teams find the treatment that will work best.

To get there, we need one million or more people. Those who join will share information about their health over time. Researchers will study this data. What they learn could improve health for generations to come. Participants are our partners. We’ll share information back with them over time.

UC San Diego Health is a partner with the NIH on the All of Us Research Program and is calling on volunteers like you. We hope you will make history and help change the future of health.

The health data we gather from participants will be stored in a database. Our team of experts work to ensure the security of the data. Approved researchers can access it to explore how factors like environment, lifestyle, and genes, can impact health. This may help develop new medical treatments that are unique to individuals, and enable a future of precision medicine for all of us.

Who is Eligible to Participate?

Adults (18 and older) living in the U.S. of every race, ethnicity, sex, gender, and sexual orientation are welcome. No health insurance is required. Any appointments needed to take part are free. Please note, the All of Us Research Program is a research study and does not provide medical care.

  • You can be healthy, or you can have a long-term health issue. There are no limits to taking part based on your health status.
  • You don’t have to speak English to join. We have Spanish-speaking advisors to help you. In the future, more languages will be available, too.
  • Those who are not eligible to join at this time include people who are: in prison, unable to consent on their own, and younger than 18. In the future, we hope to enroll these populations.
  • Having a computer, tablet, or smartphone makes it easy to give health data to All of Us. It’s also a good way for us to keep in touch with you. However, these devices are not required to join. If you do have a smartphone, you can download the All of Us Research Program app. It is free and is available for both iOS and Android phones. If you download the app, you can complete some of the research activities right there.

Become a Volunteer

Follow these steps to join All of Us.

Step One – Create an Account
If you decide to join the All of Us Research Program, the first step is to create an account. You can do this on the All of Us website at Get Started - Sign Up or at UC San Diego Health's All of Us Clinic (see contact information below). You’ll need to provide your name and email address to enroll.
Step Two – Review the Consent
Once you’ve created your account, you will be asked to give your consent. This includes reviewing a series of videos, which will provide more detailed information about the program. These describe all the types of information you may be asked to give. Once you feel comfortable that you know what to expect, and if you are ready to give your consent, you’ll electronically sign the consent form. You can do all of this from your computer, tablet, or smartphone, or at our All of Us Clinic.
Step Three – Agree to Share Your Electronic Health Records (EHR)
As part of the consent process, we will also ask you to agree to share your electronic health records (EHR). Sharing your EHR is your choice. If you decide not to share your EHR, you can still participate by answering health surveys. But you will not be asked to take part in some other aspects of the program.
Step Four – Answer Health Surveys
You will be asked to answer several health surveys. These are available on the Participant Portal. You can answer the surveys at your convenience using your computer, tablet, or smartphone. Your name will never be on these. Your answers will help build the All of Us database. Approved researchers can access this database to conduct their studies.
Step Five – Make an Appointment
You may be invited to visit our clinic to have your physical measurements taken (height, weight, blood pressure, etc.) and provide bio-samples (blood and urine). Not everyone will be asked to give blood and urine samples. You can make an appointment by emailing us at AllofUs@ucsd.edu or by calling (858) 265-1711. You can also visit us in person Monday – Friday from 8 a.m. – 3 p.m. at:
All of Us Clinic
UC San Diego School of Medicine
9500 Gilman Drive
Building 2
La Jolla, CA 92093
Behind the Medical Education and Telemedicine Building

In the Future

We hope you'll be part of All of Us for many years. We will ask you to update your health and lifestyle information from time to time.

Throughout the program, other researchers may conduct other studies, including clinical trials. These trials may study certain health problems or medications. You may be invited to take part in some of these. You can always join this research program and say no to other research studies

Access Your Information

You will have access to the data you give to the program. This may be interesting to you and help you learn about your health. We will tell you about the research studies—including findings and discoveries—that use All of Us data.

Find Out More

We want you to learn as much as you can about the program before you join. Below are some helpful resources:

Contact Us

If you have additional questions, please email us at AllofUs@ucsd.edu or give us a call at (858) 265-1711. You can also visit us in person Monday – Friday from 8 a.m. – 3 p.m. at:

All of Us Clinic
UC San Diego School of Medicine
9500 Gilman Drive
Building 2
La Jolla, CA 92093
Behind the Medical Education and Telemedicine Building

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