The Hemophilia and Thrombosis Treatment Center has cared for patients with hemophilia since its founding in 1989. It later became one of approximately 130 federally funded Hemophilia Treatment Centers, with a mandate to reach out to all patients with hemophilia and other bleeding disorders in the community in order to improve and specialize their care, as well as to ensure and afford access to life-saving clotting factors.
The federal mandate and oversight provide the center with a “low cost – high efficiency” clotting factor program that each patient can join. The proceeds of this program, called
Total Hemophilia Care, come back to support and advance services for patients with hemophilia and bleeding disorders.
Our center is part of the UC San Diego Health, the region's only academic health system. With a broad, multidisciplinary team of clinical and scientific experts in hemophilia and bleeding disorders, our treatment center is in a unique position to apply the power of academic medicine for our patients.
Our mission is to provide state-of-the art care to our patients with a team of specialized and highly trained physicians, nurses, physical therapists and social workers. This includes:
- Access to and appropriate use of clotting factors
- All-around medical care focused on the needs of adolescent, adult, and aging patients with hemophilia, including care for hemophilic arthropathy, osteoporosis, cancer and cardiovascular disease. In addition, the center works closely with the
Owen Clinic and the Liver Center to ensure that patients with hemophilia and HIV and/or hepatitis B and C virus receive appropriate treatment.
- State-of the-art research for the hemophilia community, with opportunities to participate in clinical trials studying new long-lasting clotting factor products, bypassing agents for patients with inhibitors, as well as studying joint disease and cardiovascular disease in hemophilia. This effort has the ultimate goal to create new knowledge for patients with hemophilia, advance the field and improve care paradigms.
Rady Children's Hospital San Diego: Our partnering center for transition of care from childhood to adolescence and adulthood is the Hemophilia/Thrombosis program at Rady Children’s Hospital.
Los Angeles Orthopedic Hospital : Our partnering center for orthopedic joint evaluations and interventions is the orthopedic hemophilia program at Los Angeles Orthopedic Hospital.
- Other important resources and information for patients with hemophilia:
Community outreach in hemophilia is provided through the Region IX Comprehensive Hemophilia Care Program. This program was launched almost two decades ago by the US Department of Health and Human Services (HRSA) since hemophilia is a crippling, rare inherited blood disorder with physical, social, emotional, and financial consequences. We are one of 14 hemophilia treatment centers in Region IX (California, Hawaii, Nevada, and Guam) to provide clinical care, outreach, and education, to reduce mortality and morbidity. Our region services more than 5,500 patients and their families.
Comprehensive team based diagnostic, treatment, prevention, education, counseling, consultation and referral services offered at the hemophilia treatment centers will improve health outcomes. Care at our centers is family centered, culturally competent, community based, and easy to access. Patients are partners in decision making and care objectives.
Our centers provide access and care for those who are underserved such as females, minorities, geographically distant or insurance restricted patients.
We assist in enrollment into California's
Genetically Handicapped Persons Program (GHPP) which will help patients with hemophilia and other bleeding disorders to take care of their health care needs.
National Hemophilia Foundation guidelines that improve health and quality of life among affected persons and families.