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Total Hemophilia Care: Clotting Factor Homecare Program

The Hemophilia and Thrombosis Treatment Center launched its own clotting factor homecare program, called "Total Hemophilia Care," in 2010. The program is available to all of our patients with hemophilia, von Willebrand Disease and other bleeding disorders. As a federally funded hemophilia center, our program is authorized and regulated by the Health Resources and Service Administration (HRSA) and part of 340B/PHS legislation. HRSA is the primary federal agency for improving access to health care services for people who are uninsured, isolated, or medically vulnerable. Our center is committed to this mandate.

Proceeds from our HRSA-certified clotting factor program ensure funding for maintenance and expansion of patient programs and comprehensive care support for patients with hemophilia and bleeding disorders. Joining our clotting factor program means investment in personal long-term care, health, and well-being.

Below are commonly asked questions about our new 340B/PHS homecare program, Total Hemophilia Care.

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What does PHS stand for?

PHS refers to Section 340B of the Public Health Service Act of the Veteran’s Health Care Act which was enacted in 1992. The PHS Act covers a diverse group of healthcare organizations including community health centers, black lung clinics, AIDS clinics, and hemophilia treatment centers.

Why are hemophilia treatment centers included in this group?

Hemophilia treatment centers (HTCs) receive federal grant money from the Maternal and Child Health Bureau (MCHB) of the Department for Health and Human Services. As such, they are considered a “covered entity” under the PHS Act.

What is the advantage of being included in this group?

Hemophilia treatment centers are eligible to purchase certain clotting factor products at a discounted rate as determined by the federal government and by PHS guidelines.

How do the HTCs benefit from the discounted pricing?

Under the PHS Act, hemophilia treatment centers may purchase clotting factor products from manufacturers and distribute to patients of the center. The revenue derived from the sale of these products goes directly to support the center’s clinical programs and to provide much needed services, such as additional nursing, social services, physical therapy, screening programs, and training programs for new hematologists.

If hemophilia treatment centers already receive federal grants, why do they need to sell clotting factor products?

Although hemophilia treatment centers may receive some funding from the Maternal Child Health Bureau, the dollar amount falls far short of what is needed to keep an HTC functional. In addition, these federal dollars are fewer and fewer each year. The reason many HTCs develop their own PHS program is to have the ability to maintain and grow services that they can provide to their patients without relying on funds from the federal government.

What are the benefits to patients and families?

By lowering the overall cost of clotting factor products, a PHS program will extend a patient’s lifetime limit on their insurance. Plus, by keeping the hemophilia treatment center financially healthy, patients and their families can feel secure in knowing that the unique care they have been receiving from the HTC’s specially trained staff will be there next week, next year, and for many years to come. In our case we urgently need to expand clinic space, and provide resources for expanded physical therapy and social services for you, provide resources for dental care and hygiene, and for a nutritionist. Also, we urgently need support to educate the next generation of hematologists to become hemophilia specialty care providers. If you chose to join our Total Hemophilia Care program, the proceeds from your clotting factor sales will be directly applied to above goals.

Which patients are eligible for a PHS program?

Anyone who is a patient of the hemophilia treatment center is eligible. It is up to each patient to choose if they would like to select our program as their factor provider.

What do I need to do to start getting my factor from Total Hemophilia Care?

Your hemophilia treatment center is now just like other homecare providers with whom you may already be familiar. If you are interested in having Total Hemophilia Care provide your factor and supplies, just call our Hemophilia and Thrombosis Treatment Center at 619-471-0335 or use the toll free number, 888-437-5187. A customer care representative will assist you with all the necessary insurance forms and arrange your future deliveries.

For more information on how the 340B program improves health outcomes and reduces costs, please watch this video, 340B and Hemophilia Treatment Centers: Improving Health Outcomes and Reducing Costs, produced by the US HTC Regions VIII, IX, and X.

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Meet our Specialists

Drs. Annette Von Drygalski and John Adamson are the only physicians in San Diego, Riverside and Imperial counties who specialize in hemophilia care.

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