Major Support Organizations
Muscular Dystrophy Association (MDA) - Caregiver's section
ALS Caregiver’s Guide
This comprehensive guide to caring for someone with ALS is published by MDA. You can also order a free print copy from your local MDA office.
Caregiver Action Network
Formerly the National Family Caregivers Association, the Caregiver Action Network is a nonprofit organization that provides free education, support and resources for family caregivers.
National Alliance for Caregiving
The National Alliance for Caregiving is a nonprofit coalition of national organizations focusing on issues of family caregiving with the goal of improving quality of life for families and care recipients.
Family Caregiver Alliance
Family Caregiver Alliance is a nonprofit organization that offers programs at national, state and local levels to support caregivers and provide phone consultations and referrals.
National Respite Network and Resource Center
This is nation-wide directory of respite programs that can provide complete patient care in both home and hospital settings and is designed to help give family members a break from caregiver responsibilities.
The Veteran’s Administration offers a variety of caregiver support services. For more information on services available in San Diego, call Karin Kupka at the San Diego VA Health Care System at 858-623-1801.