Hemophilia Patient Resources
- "100 Questions and Answers about von Willebrand Disease" by Andra H. James
- "100 Questions and Answers about Deep Vein Thrombosis and Pulmonary Embolism" by Andra H. James, Thomas L Ortel, Victor F. Tapson
- "100 Questions and Answers about Vascular Anomalies" by Francine Blei, Carlita Anglia
- 340B and Hemophilia Treatment Centers: Improving Health Outcomes and Reducing Costs , produced by US HTC Regions VIII, IX, X.
Community outreach in hemophilia is provided through the Region IX Comprehensive Hemophilia Care Program . This program was launched almost two decades ago by the US Department of Health and Human Services (HRSA) since hemophilia is a crippling, rare inherited blood disorder with physical, social, emotional, and financial consequences.
We are one of 14 hemophilia treatment centers in Region IX (California, Hawaii, Nevada, and Guam) to provide clinical care, outreach, and education, to reduce mortality and morbidity. Our region services more than 5,500 patients and their families.
Our care is family centered, culturally competent, community based, and easy to access. Patients are partners in decision making and care objectives.
We provide access and care for those who are underserved such as females, minorities, geographically distant or insurance restricted patients.
We also assist in enrollment into California's Genetically Handicapped Persons Program (GHPP) which will help patients with hemophilia and other bleeding disorders to take care of their health care needs.
We enforce National Hemophilia Foundation guidelines that improve health and quality of life among affected persons and families.