People with Hemophilia Family Day 2023
Please join us on Saturday, October 28, 2023, for a day of fun activities and presentations.
Get details in Spanish and English
​The Hemophilia and Thrombosis Treatment Center (HTC) is an innovative, multidisciplinary program catering to the needs of adult and adolescent patients and their families with hemophilia, von Willebrand Disease, and other bleeding and thrombotic disorders. The center provides personalized, comprehensive services under the directorship of
Dr. Annette von Drygalski.
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Comprehensive Patient Care
- Consulting service for community physicians, hematologists and oncologists
- Referrals for surgical interventions such as joint reconstruction, radiosynovectomies or lateral radial release
- Home infusion training with factor concentrates
- Supply and delivery of factor concentrates (through our
Total Hemophilia Care homecare program)
- Emergency care for bleeds
- Inhibitor management
- Coordination of care with specialists in infectious disease and hepatology (through UC San Diego's
Owen Clinic and
Liver Center)
- Support for
women with bleeding disorders and heavy menstrual bleeding
- Social work services including psychological support, financial and insurance counseling for patients and family members
- Coordination of home factor infusion for
dental care and surgical procedures
- Guided transition of care for adolescents with bleeding and clotting disorders into young adulthood in close partnership with the
hemophilia/thrombosis program at Rady Children's Hospital San Diego
- Rapid bleed detection through point-of-care ultrasound
- Around-the-clock availability of highly trained physicians and nurses
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Services for carriers, such as mutation analysis and family planning
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Opportunities to participate in clinical trials
Patient Education, Support and Programs
- Social work services including psychological support, financial and insurance counseling for patients and family members
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Resources and community outreach for patients and/or families to increase knowledge of the disorder and help improve quality of life
- Physical Therapy services to help with recovery after joint bleeding, arthritis management, and promote overall wellness
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Massage therapy to relieve pain and stiffness that comes with target joints and after surgery
Research and Clinical Trials
The Hemophilia Research Program at UC San Diego Health is directed at advancing new therapies, evaluating novel aspects of hemophilia care, and creating new knowledge about the evolving needs of aging patients with hemophilia.
The program includes clinical trials as well as translational and basic research in hemophilia. Our patients have the opportunity to participate in cutting-edge research and contribute to scientific and medical knowledge in a variety of innovative ways that could not only help them but also help the larger community of affected patients.